Thursday, May 2, 2024

Issue:

Mackay and Whitsunday Life

Money Raised For Rare Condition

A local family is feeling the love this week, with their local school gathering together to support young Lily Arroita who is living with Turner Syndrome.

This is a rare condition that only affects females and is caused when one of the X chromosomes is missing or partially missing.

Lily was diagnosed in November 2022, which Lily’s mother said was quite late.

“Lily was considered quite old to be diagnosed,” she said.

“Usually, it can be picked up at birth, but as girls get to puberty age, it will often be picked up and that was the case with us.”

Burdekin Christian College (BCC) decided to show their love for Lily by holding a fundraiser ‘Purple Day’, selling butterfly broaches and raising awareness.

Together they managed to raise $300 for Turner Syndrome.

Principal of BCC, Debra Creed enthusiastically shared why this was an important cause to donate to.

“It was important to us that students, parents and our staff understand a parent’s perspective and also the challenges that students with Turner Syndrome face on a daily basis,” she said.

On behalf of the College, Lily presented the cheque to the representatives of the Turner Syndrome Association.

Debra urges all to continue donating as every cent helps support people with Turner Syndrome.

Lily presenting a cheque to a Turner Syndrome Association representative. Photo supplied

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